Friday, April 17, 2009

Ups and Downs

I definitely feel that today required a lot of stamina as it was full of ups and downs. While the morning and portions of the day provided good signs, with a good removal of Taye's breathing tube, the afternoon and evening provided some challenges.

For most of the day, Taye's breathing remained steady and calm. Every so often he would begin to become agitated and would move around a bit. Even though it is difficult to see his grimacing face, it was selfishly helpful to see his body move. It was noticeable today that his left side of his body is the stronger side, however his right arm was pretty active today as well.

We both were able to hold him today, which was awesome! We had the opportunity to try and feed him as well. It was a little strange because he had difficulty taking the bottle. He wasn't able to suck with ease, but somehow he ended up taking 4.5 ounces. However, a few hours later he woke up abruptly and threw the majority of it up. A small setback. We were reassured that this happens and we (mostly me) needs to keep remembering he is recovering from a trauma and a surgery.

In any event, the high point of the day is that, at one point, Taye had his eyes open and appeared to be seeing and hearing our voices. He struggles to look to the right side, but he certainly had some movement that was reassuring. He even moved his right leg up at one point, which was the first time it had moved in awhile.

The hardest point of the day was around 9pm, when Taye experienced a seizure that dropped his oxygen level. It is alarming to have everything seem status quo and in an instant, need to be attending to something.

The day has been long. I have needed many reassuring conversations with nurses, practitioners, residents and doctors. The staff has been amazing and have been very helpful in answering many of our questions and addressing concerns. The tone set by all has been hopeful with a recognition that time is needed to determine more things and set a course of action.

Thank you again to all the thoughts and prayers that have been sent in our direction. We greatly appreciate all the visitors and support from family and friends.

18 comments:

Anonymous said...

Joanna and Benjamin:

Thank you for taking the time to update all of us in this busy, scary and hopeful time for your family. Those of us with children know that you will do anything for them. And, we all know the power of prayer. Know that the Casagrande Family (a Holy Spirit Lutheran family) has you in their thoughts and prayers.

Beth & Rico said...

McKinneys - Stay strong!! We are all thinking of you and praying for Taye.

Bill said...

Our prayers continue to be with you both at King of Kings. We are updating people and there are many who are going to God and pleading for his healing and his love for you both. Just know that we are with you and many prayers are ascending!

Pastor Bill <><

Anonymous said...

Keep praying! Prayers are working, Taye is getting better in small increments. Hopefully, with prayer, he will continue to improve. It is going to be a long road to recovery, but if you stay strong as a family and in your faith, it will be a worth it in the long run.

Megan Cebulski

Cheryl T said...

To all of you,

You are, and will continue to be, in my thoughts and prayers. I have been asking for additional prayers from friends. Thanks so much for keeping us updated.

God's strength and love,
Cheryl T.

Jason and Colleen said...

You are in our thoughts and prayers. Please stay stong and continue to have faith.

DDanielle said...

We continue to pray, for both his continued recovery and your strength. We also thank God for the small steps om his healing.

Deanna said...

What a roller coaster!

We love you guys... Hang in there, and know that prayers of all your friends and family are lifting you up, even when you aren't sure that you can stand any longer. It is so encouraging to hear of the strides Taye is making.

Thanking you for taking the time to keep us posted.

Anonymous said...

Remind yourself to just take one day at a time. God is in control of all things and will guide you through. Remember to take good care of yourselves! Love and prayers, Keith, Jo, Jessica & Alex

Amber Marie said...

The Evans Clan has you all in our thoughts and prayers. May Taye continue to improve and be home with you soon! All our love.

Anonymous said...

Count us among your prayer warriors, not only for Taye's full recovery, but also for your strength and confidence through this ordeal. The Lord be with you!

Art & Carolyn Wilde

Bill and Linda said...

We will be keeping all of you in our thoughts and prayers. We are here to help you with ANYTHING you might need!

Bill & Linda Kirchner

Mandy said...

It was wonderful to see you tonight and meet your beautiful little boy. You are all in our prayers. If you need anything give us a call. We love you guys.

sue warner said...

HI Joanna and Ben

I was so sorry to hear what happened to Taye the other day. Your family is so precious. I am sure everything will be fine with time, patience and faith. Please know that you are in my thoughts and prayers. You have so many friends and family that are thinking of you and will help if anything is needed to get you through this emotional and stressful time. Thank you for updating your blog and keeping us informed.

Anonymous said...

Your family has been in my thoughts almost constantly since I heard of Taye's accident. Know that all of the extended Evans' family is praying for your son and his recovery.

Debbie

Wendy said...

Thank you for letting us know how Taye is doing. Our thoughts and prayers are with you and your family.

Unknown said...

Hi Joanna & Ben - Your precious family has the best medicine - the prayers, love, faith and support of your family and friends!

Diane, Jesse & Joshua

Anonymous said...

Ben, Joanna, Mikias,
All of you are in our prayers.
The day care parents and children send all thier love to your family. And we will be here to help in anyway we can. Take care
Robin and the day care families.