Thursday, June 11, 2009

Catching up

I'm attempting to "catch up" here on several weeks of news and activities. Definitely the reason we haven't been on here much lately is that our schedule has been pretty packed with doctor appointments and the general craziness that revolves around managing two kids.

First of all, Taye continues to do exceptionally well. He had a follow-up CT scan a couple weeks ago to see how things looked and to determine if he's ready for the second surgery. The CT showed that he still had some accumulated fluid, but nothing to be concerned about. The brain swelling has definitely subsided and, as gross as it sounds, we can actually feel the edge of the hole in his skull when we feel that soft spot. Also, the brain mid-line continues to improve and get closer to center. As a result, the surgery is a "go" and is scheduled for Monday morning. This surgery will just replace the section of skull that was originally removed and possibly drain some of that excess fluid. The neurosurgeon indicated that we'll probably be in the hospital 2 - 3 days. The one thing that will be watched closely is whether an infection develops from reinserting the bone...even this is not likely though.

We've had a couple good doctor visits to some specialists. First we saw a physical medicine doctor who directs the physical / occupational therapy for Taye. She was extremely encouraged by what she saw. It seems that most of the gross motor skill issues we're dealing with in therapy are a result of Taye's stay in an orphanage and not necessarily from the injury. Of course there are some other things that are injury related too. Overall, she indicated that Taye would be in some sort of physical therapy until he's 2. But, again, she thinks that he's doing great and will not have long-term physical issues.

To supplement the PT/OT that we're currently doing through Beaumont, we also got hooked up with the Oxford schools and some of the services they offer. After thoroughly evaluating Taye and creating a big report on him, they determined that he is eligible to receive PT & OT through the schools here. The only thing is that they stop services for the summer, but in the fall he'll probably go to PT/OT here once a week. So we'll probably just use this to supplement what we're doing through Beaumont starting in September.

This week we saw the neurologist. This was another very encouraging visit. Since there haven't been any issues with seizures and since he's on such a low dose of the medication, Taye will likely be weened off those meds soon. The neurologist wanted to wait until after surgery to stop the medication, but she thinks that he'll do just fine.

In terms of Taye's new "tricks"...he has several. He's started babbling a lot....dadada, bababa, stuff like that. This is good news because a lot of times developmental delays show up in speech. Most importantly, Taye has started to drag himself across the floor...I'd like to say "crawl" or "skooch" but it's definitely a "drag". His right arm does all the work right now and he's very successful at getting where he wants to go. The physical therapist wants us to encourage him to use his left arm too, obviously, and he loudly protests when we intervene. We'll get there eventually, but this is a good start.

Probably Taye's most significant trick is weight gain. He's now up to 22 lbs....just 4 lbs lighter than Mikias. He gained 5 lbs. in 6 weeks after leaving the hospital. Looking back at some of the pictures from early April, we think he was definitely a bit malnourished when we got him and he's catching up now. He may be the "younger" brother, but I don't think he'll be the "little" brother for long.

Whew...I think that's all the Taye news.

As for Mikias...he's loving the warmer weather. He loves being outside and throws a fit when it's time to come in. I took him to the zoo a few weeks ago with a bunch of people from his daycare and we had an awesome time. Of course Mikias had so much fun and used up so much energy that he eventually fell asleep in the stroller.

It seems like recently Mikias has begun to talk constantly and I've noticed he has a very, very good memory. He puts pretty good sentences together too. And he talks a lot about Taye and to Taye. He seems very proud to be a big brother. Of course inevitably Mikias seems to bring up the hospital, but I think it's because he had such a fun time playing in the play area on the children's' floor.

Last weekend we went up north to the cottage. It was really, really nice to get away for a few days and very fun to be up on the lake. We didn't do much other than just sitting around and playing at the park...but it was just what we needed.

Joanna & Taye hiking at Bald Mountain park (Taye's 1st hike)

Benjamin & Mikias hiking too

Mikias' mad bike riding skills (note the helmet protecting for head injury!)

Benjamin & Mikias mowing the lawn (for 45 min...seriously!!)

Mikias & Taye chilling up north

Joanna & Mikias on Heart Lake

Taye & Papa up north

Mikias' gotcha day gift...Benjamin played with it more


Anonymous said...

Love all the photos! I most have the cutest nephews in the entire world.


Anonymous said...

They are both ABSOLUTELY ADORABLE, Joanna!!!!-Stacey

Anonymous said...

So good to hear your good news for Taye! We also love Mikias' wonderful videos - Happy Gotcha Day and bike riding. Before you know it, he'll be asking for the car keys.

We'll keep all of you in our prayers.

Love, The Ungers